Ups and Downs

It has been an up-and-down week. We have had good days, bad days, and some that were in between. Micah continues to eat well, and takes his medicine reliably. But he's still having way too many seizures most of the time. It is frustrating and discouraging, but we are trying to stay hopeful.

We have been enjoying the snow (I know, that seems strange to many of you). We went sledding and snowshoeing on Tuesday, and played in the yard other days. Today the snow was finally conducive to attempting a snowman. Poor snowman; Micah liked knocking it down more than building it up. So now it is lying down rather than standing up. We'll just say it's "sleeping".

We have been so thankful for the meals that several people have brought! Not only have they been delicious, but they have meant that David and I can both prepare Micah's food and also eat well ourselves--thank you, thank you, thank you! We are getting better at the food prep thing, but it still takes a long time to measure everything out exactly and follow all the instructions for cooking. We will keep getting faster, and once we know for sure what ratio we are on, we can do more batching and freezing.

We will be in contact with the doctor and dietitian in Chicago on Monday, and it is likely that we will increase Micah's ratio from 3:1 to something higher than that. Or we may need to wait some more on the ratio we're already using. We'll just see what they say!

Micah went back to daycare this week, for just a little while on Wednesday and Thursday. He was there for only one meal, and we sent his food with him (blueberry pancakes both days--a favorite, and very easy to eat). He ate all his food, didn't seem bothered by the other children having different food, and seemed to have a good time. We'll keep working up to his full 5 hours those days over the next week or two.

I plan to head back to work at least some this next week. I look forward to getting out of the house and thinking about something other than the difficulties we are having right now. Sunnyside has been very gracious in granting me the time we have needed to get this diet started.

Micah is looking forward to going to church tomorrow. He was asking to go today. So even though he will not be able to have pretzels in the nursery, he will still have his friends Oliver, Carter, Deborah, Mia, and even Ella who is back for a visit! Good times for a social child.