Night One in a Shared Room

We arrived safely at Children's Memorial. I am checked in to the Ronald McDonald House a few blocks away. So far today Micah has had an echocardiogram, which took about an hour, a TB test, and is now hooked up for a video EEG--electrodes all over his head, wrapped in gauze with a colorful wire ponytail. We are waiting to go down for a chest x-ray, so his EEG paraphernalia is in a Buzz Lightyear backpack. We went for a little walk in the hall, and it is so heavy it almost tipped him over! We are grateful that this x-ray is happening shortly (about 8pm our time) rather than the middle of the night, as we had feared. Apparently there were lots of ER patients who needed x-rays, so we had to wait.

In the morning Micah will have a series of blood tests and then we expect to have his first injection. We'll see how that goes. He has been eating well today, though his meds were a bit tricky tonight.

It is always a bit of a shock to have our schedule and environment in the control of others.

A FEW HOURS LATER...

Chest x-ray complete. We hope his lungs are clear from the pneumonia of a week and a half ago. Now it's time to sleep, but it is bright and our roommate is watching TV. The volume is not overly loud, but Micah is used to a very quiet, dark room to sleep in. I will head back to RMH soon and David will stay here and (we hope) sleep. Thai noodle curry for supper hit the spot and now all we need is a good night's rest to prepare for what tomorrow may bring.