Our little dartboard

My poor boy. On Monday we more than doubled Micah's dose of ACTH, which means he has to have two shots per day instead of only one. Sandy continues to do the morning one, and I am doing the one in the evening. The front of his thighs are full of small bruises and tiny pinprick marks. Last night when I gave him the injection, he was distraught for probably close to a half hour afterwards. It was so hard to have him want to be held and comforted, but not want to be touched by us (David had to hold him down for the shot and I was the one who actually poked him).

But, fortunately, the injections seem to be having a positive effect on Micah's seizures. We have seen a fairly significant reduction over the past few days. We don't know if it will last or if it is just a blip, but we are feeling good about this. It makes the distress of the shots feel worth it.

He is definitely cranky at some points, lethargic at others, and needs to just pace the floor sometimes. He is still sleeping through the night. That that would change was our biggest worry--none of us do well on little sleep.

So we are doing alright. We will check in with the doctor on Monday to give a weekend report. We don't know if we might see further improvement. It would be great if that was the case. If not, we'll try something else.