We arrived home about 10:30 last night. My parents had driven over to deliver the medicine for Micah's injections, and were here to greet us. Also waiting for us was a sparkling clean house, thanks to the Preacher Mamas. We were so glad to arrive safely--it was a dark and stormy night! Lake Michigan waves along Lakeshore Drive in Chicago were quite something. I don't know how big they were because it was hard to see at night, but the spray was going probably 30 feet in the air where they were hitting the seawalls.
It felt so good to sleep in our own beds last night. We all slept hard until about 6:30, when we got up to greet Sandy, who so very kindly came on her way to work to take Micah's blood pressure and give him his injection. I don't know what we would have done this morning without her! There was a bit of a snafu regarding the needles, but she was able to calmly figure it out, thanks to her expertise. It also didn't take her nearly as long to do the injection, or maybe it just seemed to take forever when I was actually the one who did it.
After Sandy left, we all went back to bed for a few hours. Micah asked to go outside a few times, but that was a no-go because of the rain, wind and cold. We'll see how cabin-feverish we get in the next few weeks. Micah had a pretty good day, but we are finally beginning to see some of the grumpy side effects of the ACTH. It was clearly not much fun to be Micah at times this evening. It wasn't all that much fun to be his parents, either, for a while, but we feel sorry enough for him that we don't begrudge him his bad mood. We know it is not his fault; we just have to be patient over the next few weeks. And really, very tolerable, since it isn't all the time--yet.
We are grateful that Micah is tolerating the steroid fairly well. We are grateful for friends and family who are willing to share their time and skills to help make our journey easier. We are, most of all, grateful to be home. We are so thankful to have a world-class facility within a few hours' drive, and we are always equally glad to see it in the rear view mirror as we head out of the city.
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Glad to hear you're home. Maybe you need a trip to the library to get "The Purple Kangaroo" our new favourite story book. Also highly recommended is "Alphabet Oops - The Day Z Went First"
ReplyDeleteRight now a few days in the house sounds like fun, especially if it could involve naps! But I know that when it's imposed it isn't as fun as you imagine it would be.
Praying for Micah's health & your grace,
Charmaine & the boys